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Objective:
Despite single and isolated experiences, in almost
all therapeutic communities for drug addicted persons no programs or targeted
interventions on seropositivity are performed. We tried the realization
of self help groups (SHG) at two residential therapeutic communities of
the Exodus Foundation to verify benefits, problems and meaning of this
experience.
Method:
Realization of 2 SHG (with moderator) for a 6 months
period. Moderators recorded on an purpose-made 4 columns grid (1: topics
emerged; 2: contents specification ; 3: evolution; 4: interpretation) what
emerged and evolved within the group, thereafter sharing the experience
with a team of psychologists, physicians, community educators and SHG moderators.
SHG attendants themselves participated to the discussion and to the definition
of of their activity’s outcomes.
Results:
The most of PlwHA staying at the therapeutic community
participated in the self-help groups. SHG showed useful to help some of
the participants to: manage the disclosure of their seropositivity; decide
whether to disclose it or not; improve compliance to therapy and relationship
with practitioners; to face sexuality and affectivity problems; improve
health care; work out relationships and problems with seronegative guests
of the community; to share and elaborate deaths memories. Also following
problems emerged: the moderator’s centrality and self-management difficulty
for SHG into the community context; centrality of the topic "Community"
in SHG and subsequent risk that this conditions development; possible transformation
of the SHG in a claiming pole which ends to manage conflictual situations
with the community; importance and - along - difficulty to warrant privacy
towards community educators; importance that educators be sensitized about
the particularity of SHG and about the right priority to associate to this
experience inside the community.
Lessons learned:
From our experience SHG represented: a spur of change;
they participated to anxiety control; they generated a mutual recognizing
and community; they joined the group; they promoted empowerment by information
and relationship; they boosted a greater sense of safety in persons; they
allowed elaboration of experience that differently would have gone only
introspective paths, they helped persons to open themselves to others and
to help, etc. Therefore we believe that SHG for seropositive persons may
represent a useful experience. If considered within the community these
SHG may facilitate individual and collective growth paths with the purpose
to improve the context.